A Conversation Regarding FAB Use
FAB, noun; abbreviation for Foot Abduction Brace,
"shoes on a bar" ; a clubfoot brace as used in the Ponseti
Method Treatment Plan; also known as a DBB.
I will try to give you FAB wear tips here, however, there is a lot to
say about this subject and much to know before you can
understand why it works, and how important wearing the foot
abduction brace is to your child.
Regarding the use of the FAB there is one law of physics you
need to know. With out proper use of the FAB, your child’s
clubfoot/feet will relapse. No If's And's or But's about it.
Dr. Ponseti says he does 20% of the treatment with his casts but
the parent does the remaining 80% with the FAB usage at home.
The best casting treatment in the world will be for naught if it is not
maintained with a FAB.
Which brings us to Point #2: There are doctors and parents who
misinterpret the use of the foot abduction brace, believing the
FAB gives correction, much like a cast. This is wrong. The FAB
does not give, it maintains. That is a big difference yet a very
key point to keep in mind.
Over the years we have narrowed down three main reasons for
FAB failure. They are:
1) The FAB is not set up correctly prior to use.
2) The feet are not corrected fully, thus they are not ready for
FAB wear; and
3) Misinformation on the part of both parents and doctors.
1. Setting the FAB up correctly is paramount to success.
Wearing the wrong adjustment twenty three hours a day for three
months will not work. It will cause pain and suffering and relapsed
conditions for the child.
2. Putting a FAB on a baby’s feet when those feet are not
fully corrected likewise will result in failure, at the cost of pain,
suffering and relapsed conditions for the child.
3. Misinformation leads to FAB’s being set up incorrectly or
applied incorrectly whether the feet are corrected or not.
Let's examine each of these three points in more detail:
1) FAB set up incorrectly: Believe it or not, there are doctors
and brace specialists who know less about this than you do! Yet
these are the professionals who are advising and instructing
you…. We as parents must use this thing, and our children must
wear it, therefore it stands to reason we must be educated
regarding its use.
Briefly, there are two styles of braces popularly used in clubfoot
treatments: They are the Markell (white shoes on a red or a gold
bar), and the Mitchell's (leather sandals on an adjustable
aluminum bar). They work on the same principal with only one
minor difference. The Markells are set to 70 degrees while the
Mitchells are set to 60 degrees (of outward rotation). The photo
to your right of my baby Garrison in his Mitchell FAB shows how
the toes are pointed outwards - that is the outward rotation. A
clubbed foot set to less rotation will likely suffer relapse, or at
least a decreased rate of success in the end.
The shoes on your clubfoot brace should be shoulder width
apart. Again, misinformation haunts this fact. The actual
heel of the shoe is not the actual heel of the child’s foot inside the
shoe. Make sure the child’s heels are shoulder width apart, not
just the exterior of the shoes. In the event of confusion, err on
the side of being too wide, not too narrow. A good rule of thumb
is to simply lay the brace on the floor, then lay your child on top of
it, so the child's shoulders are between the shoes. If it's a snug
but not cramped fit, you're good. If it's too tight, or has a lot of
room left over, the bar needs to be adjusted.
Too narrow of a bar is probably the #1 reason babies cry
and carry on in their brace - it is literally painful to have the
feet too close together.
If your baby has been wearing the foot abduction brace well for
some time and suddenly objects to it, kicks a lot, flops in the bed,
cries for no apparent reason - check the width of the bar, it is
likely the child grew, making the bar too narrow.
2) Feet Not Corrected: No amount of FAB wear will
correct a deformed foot. Wearing shoes on a deformed foot
will lead to blisters, pressure sores, infections, sleeplessness, loss
of appetite, inconsolable crying, failure of the baby to thrive,
failure to bond, lack of wear, divorce, abuse and eventual relapse
leading to further casting if you are lucky, and surgery if your are
unlucky.
Any doctor proposing to put a FAB on an uncorrected foot
in an attempt to “finish” correcting the foot should be
avoided at all cost. I can not stress enough that the foot
abduction brace is designed to MAINTAIN correction
achieved through serial casting, it is NOT designed to give
correction to an un-corrected foot!
3) Misinformation: This heading is wide open as the variety of
misinformation parents can get is as varied as the parents
themselves.
If you are misinformed, your FAB may be set up wrong.
Misinformed parents will put a FAB on an un-corrected foot;
Nisinformed parents will put a FAB on a perfectly corrected foot
wrong, leading to serious problems, i.e. blisters, pressure sores,
etc. leading to a relapsed condition requiring further casting
treatments.
A shoe applied incorrectly to the child is going to slip.
A shoe that slips leads to sores.
Sores lead to pain.
Pain leads to crying.
Crying leads to the parent taking the damn shoe off the
child to get some rest.
Taking the shoe off leads to relapse.
Relapse leads to more casting followed again by the FAB.
It’s a vicious cycle once it starts, so try to use it right from the very
start to avoid a lot of trauma to both your child and yourself.
The heel must be seated deeply in the shoe. There are a
couple tips to help a new parent achieve this:
A. Remove the laces of your Markell style shoe, open the shoe
up wide, insert the child’s foot with a sock on and plant it deeply in
to the heel pocket of the shoe while bending the knee to 90
degrees and pushing the ball of the foot up slightly to achieve
good dorsiflexion (stretching the heel tendon). Use an ink
pen to mark the edge of the toes, drawing a line on the shoe
where the toes reach to when the foot is completely in the shoe.
Now when you apply the shoe with laces, the child's toes should
be behind that line you made.
B. Cut a hole in your Markell style shoe, a “window” at the heel to
see if the heel is seated or not.
If using the Mitchell shoes, the hole is already there and you
can clearly see if the heel is seated or not. A word of CAUTION
though - it is very typical that when you first begin using a
Mitchell shoe, the heel will NOT seat completely. This is
completely normal for the Mitchell shoe ONLY, as long as
the straps are buckled very snug and the foot is pushed
back as far as it can go there will be no ill effects and soon
the heel will seat nicely.
If the foot continues to slip in either style of shoe, creating sores
or blisters, look further.
A) The shoe is the wrong size.
B) the foot is not ready for the shoe.
C) the bar is the wrong length
D) you are not strapping it on tight enough.
This all brings us to one last detail: if you are having problems
with the FAB, at least you are trying to use it. The Number ONE
reason clubbed feet relapse is PARENTAL NON-COMPLIANCE - a
fancy term meaning parents just don't use the darn thing.
With out a brace (or with the wrong kind of brace) your child’s
clubfeet/foot will relapse. No “maybe”…it WILL. Using it
according to Ponseti Protocol is completely necessary if you
expect your child to enjoy life long results of this treatment!
A quick note on FAB’s vs. AFO’s or KAFO’s, etc: Some
doctors prescribe what is known as an AFO or a variation known
as a KAFO, DAFO, etc. These are not designed for clubfoot
correction and do NOT maintain correction. They have no place
whatsoever in the Ponseti Method of Clubfoot Treatment - or
in any clubfoot treatment under normal circumstances.
The reason being this: to maintain correction the clubbed
foot/feet must be held at an outward rotation of 60 to 70 degrees,
with a dorsiflexion of 10 to 15 degrees.
An AFO cannot do this anymore than an Army boot could. An
Army boot would be just about as effective, in fact.
It is the bar on the FAB that facilitates these angles and
degrees. Even if your child only has one clubbed foot, he or she
still must wear a FAB (with the bar!) to maintain the correction,
however the non-clubbed foot will be set at approximately 30 or
40 degrees instead of the full 60-70. With out the bar holding
the feet, stretching the necessary muscle / tendon mass,
the foot will relapse.
If you and your child continue to have problems with FAB wear, I
highly recommend that you join the nosurgery4clubfoot group,
detailing your treatment history and current situation so the
thousand plus members there can help you sort it out.
Happy Feet!
Shawnee and Family
FAB Wear Tips: How to Make Wearing the Foot Abduction Brace (FAB) a Success.
|
Statistics from
the Ponseti
Clubfoot Clinic
in Iowa :
".... in our experience,
(children who do not use
the FAB properly) the
rate of relapse is almost
100% in the first year of
life;
80-90% in the second
year;
50-60% in the third year;
15-20% in the fourth year,
5-10% in the fifth,
and 6% afterwards."
In short, don't cheat on
FAB wear or you'll only
cheat your child out of
good feet.
"My FAB is fun!" says Everett.
Don't try this at home!
Hey Kids! Wearing this brace ain't so bad!
|
MD Orthopaedics, Inc.
Makers of the Ponseti Clubfoot Brace Mentioned on this Website and worn by my own children.
The Ponseti FAB by John Mitchell
|
For Further Information, I recommend you read "A Parent's Guide To The Foot Abduction Brace"
Everything You Need to Know About Using the FAB Right Here!
By Kori Rush and Naomi Powell
|
This Markell style foot abduction
brace shoe has a large hole cut
in the heel to let a pressure sore
(caused by the shoe) heal up.
The hole also lets the parent see
if the heel is completely seated in
the shoe or not.
Some parents who do not need to
let a sore heal but do need help
seeing if the heel is seated will
drill a small hole through the
shoe with a large drill bit.
These two photos of Garrison
wearing an AFO clubfoot brace
demonstrate why the AFO is not
effective - notice how the feet are
free to move with no bar to
stabilize them. Thumbnail
photos, click to enlarge.
The Ponseti Bracing
Protocol:
Typically speaking, if there
are no factors complicating
the case such as atypical,
loose ligaments, or an older
child who has been treated
with a non-Ponseti technique
to begin with, children
"should wear the brace
23 hours a day for 2 ½ to 3
months and then go to 20
hours a day for a month,
then 18 hours a day for a
month, then 16 hours a
day."
I.V. Ponseti, M.D.