(Continued from Ponseti Parent Testimonials) At the time we brought Allison home (from China) she was walking, running, and jumping on her untreated clubfeet at 34 months old. She amazed us! Allison literally walked on the tops of her feet with her feet angled backwards.
a doctor who had experience treating older children who had actually walked on their clubfeet before treatment. We knew it would be a challenge in America because we treat our clubfeet children from birth. Our search led us out of state to a doctor that we felt could successfully treat her as he had treated many other older children and used the Ponseti Method on the infants he cared for. This doctor had successfully treated an eight-year old boy from Mexico with clubfeet like Allison's and he had treated many other older untreated clubfoot children as well. Over the phone and again at our first visit he said he could not use the casting method I was hoping for with her because she was too old, as it only worked for the babies. We had heard this from other doctors as well. He said she could only be corrected through surgery (the first surgery they would need the O.R. for the day) and said we should wait 6 months before we did this to give her time to adjust to her new world, her new family, and learn more of the English language to communicate her needs better in the hospital. We asked if waiting for surgery would do any damage to her feet and they said absolutely not, look at her now how well she walks, runs, and jumps and all. Unfortunately we believed them. After our second visit back, several months later, my mother's intuition told me something was not right and I began researching doctors again. After many more phone calls, lots of late nights of research again, meeting with our local family doctor, calling a local Ponseti trained doctor here again that couldn't help us either, and feeling totally alone and disheartened in my search I finally came across a list of Ponseti trained doctors. I e-mailed many of them and only three of these doctors in the country that I contacted had experience treating older children. They were all so generous with their time, calling me back quickly and answering all of my questions. All three doctors felt confident the Ponseti casting method would work for her with minimal surgery. My husband and I were elated as we finally had the answers that we had been praying for all along. At this point we were leaning towards traveling to one of these doctors, Dr. Dobbs in St. Louis, Missouri. In the meantime, her original doctor we had traveled to called us to discuss the severity of her case and said he felt she might possibly end up being an AMPUTATION case even after all the surgeries they had planned for her because her case was so severe. I knew this was not right and was glad I made the decision to find another doctor prior to this information. At this point, I thought to myself, "This is crazy, here I'm making sure all of these doctors are trained in the Ponseti Method, why not call the person directly that developed this method to make sure we are making the right decision this time before we travel to another doctor out of state again and find out we could still be in the wrong place?" So I looked up his number and called him (Dr. Ponseti) myself. I really didn't know anything about him at this point. I just knew I wanted to talk to the doctor that developed this method to get some guidance on Allison's treatment. I was amazed that he took my call right then and we discussed Allison's situation for about an hour. I told Dr. Ponseti about the doctor we had decided to change to and Dr. Ponseti felt this doctor was a very good choice for Allison. It ends up that Dr. Dobbs studied under Ponseti for many years and he is absolutely phenomenal. I then asked Dr. Ponseti if I could e-mail him some pictures of her feet before our consultation and he said, "No, don't waste your time as I know more from feeling and manipulating the child's foot in my hands." With that statement I knew he was actually the doctor we needed and at this point I wanted the doctor that had the most experience and Dr. Ponseti being 91 years old at the time of course had my vote. I then asked him if he would treat her and he said yes. I couldn't believe it. (Little did I know he says yes to everyone.) He was shocked her original doctor told us we could wait 6 months for treatment. He knew waiting for treatment was very bad, especially for her as active as she was and given her age. It wasn't long before I realized how right he was. Four days after talking to Dr. Ponseti, my daughter, son, and I flew out to Iowa to start the most amazing medical transformation I've ever witnessed. I was in total awe of Dr. Ponseti and his staff. He loves children and was so amazing with Allison. She did GREAT with all the cast changes. We stayed in Iowa for three months while she had her casts changed usually every 4-5 days by Dr. Ponseti. I felt like I was witnessing a miracle unfold one cast change at a time. Allison did very well with having her legs casted for so long and cruised around in her little wheelchair at the age of 3.5 years old entertaining people wherever we went. Wearing the casts had very little affect on her life, as she still did everything she did before just with a little different flare. She could crawl up and down the stairs, ride a tricycle, get on and off furniture, stand up in her casts, and she even figured out how to walk a little in them. After 17 cast changes and a 2.5 hour surgery (which was a tenotomy and ATTT on both feet) at the end done by Dr. Morcuende (who travels the world teaching doctors the Ponseti Method), Allison had beautiful straight feet. She was in casts for almost 5 months so she had to relearn how to stand and walk again, but did it well and was running around in no time. And this time she was running and walking with sandals and light up shoes that she could only dream about wearing before.
to have special booties custom made for her to wear. She would always ask me if she could wear sandals and I would just say, "Someday when you are a little bigger you'll be able to and then Mommy will buy you the most beautiful pair of sandals you've ever seen!" When Allison got her final casts off after 5 months I had a cute little pair of sandals she had picked out with me during the summer and we put them right on her feet. She was so proud and wore them everywhere in the middle of winter in Iowa, even sleeping with them the first week. It was amazing! Allison's right foot was very severe and Dr. Pirani from Canada (that goes to Africa one month each year to help clubfoot kids) came and looked at her feet during one of her cast changes in Iowa. He concurred with Dr. Ponseti about how stiff her right foot was and said even with all the older children he treats in Africa he had never felt a foot as stiff as Allison's. He said most of the feet he worked with were more flexible like her left foot. Well needless to say, shortly after she got out of her 5 months of casting we did discover a problem with the right foot that developed in a short period of time and they did have to go back 10 months later and do an osteotomy of the lower tibia on the right leg to overcome the problem with her foot this last October. At first this was scary to me as this was everything we had tried to avoid, but when I questioned Dr. Ponseti and Dr. Morcuende more and did more research I realized this was the best option. Now her feet are perfect and still pain free. She has +20 degrees dorsiflexion on the left foot and +5-10 on the right foot where the osteotomy was done. She is now running, jumping, and doing everything again with no pain or limits. Our family and friends just marvel at how great and normal her feet look. It's amazing. You can hardly see her scars, which are so small anyways. Dr. Ponseti's method of treatment is created miracles for children all over the world. To watch him mold Allison's feet with each casting was amazing. This casting minimized the amount of surgery needed and that was so important to us. Now our daughter will be able to do anything she dreams as she grows up because she will not be limited due to painful feet. I cringe every time I think of what could have happened if we had stayed with the original clubfoot doctor during that time. However, now the good news is that these same doctors have discovered the miracle of the Ponseti method for older children after seeing what it did for Allison and hearing of our great results in Iowa. They have now changed their approach with the older children and do castings first no matter what a child's age is before ever taking them to surgery. While in Iowa I had the privilege of meeting two men who had both been treated by Dr. Ponseti as babies. One in 1952 and one in 1956 and they are both very active today with pain free feet. Both are avid runners, with one of the gentleman training to run marathons. That to me is a true testament to the effectiveness of the Ponseti Method for treating clubfeet. There are many doctors worldwide who are trained in his method. The most important thing when choosing your doctor is to educate yourself on the Ponseti Method so you know that your doctor is following it 100% and not deviating from it in anyway. Trust your own instincts as a parent as there are some doctors that claim to be doing the Ponseti Method and not following the protocol 100% therefore not getting as positive results as they could. My life is richer today due to Allison and also the people we've met in our journey to correct her clubfeet. Sometimes I'm in awe of the blessings we've been given since we brought Allison home. I feel privileged to be her mother! Sincerely, Joyce Proud Mommy to Allison, bcf, home with her family in 2004 at age 34 months Here are some clubfoot links below that some of you might find interesting: http://www.uihealthcare.com/topics/medicaldepartments/ortopaedics/clu bfeet/index.html http://members.tripod.com/ponseti_links-ivil http://groups.yahoo.com/group/nosurgery4clubfoot http://groups.yahoo.com/group/clubfoot |
| Allison's Clubfoot Story: Where Spain and China Meet. From a predicted foot amputation to wearing fancy sandals, this is a truly amazing success story where one little girl adopted from China meets an old Spanish doctor 90 years her senior ...their paths crossed in a little place called Iowa City, Iowa U.S.A. where clubfoot changed their lives forever. |
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