What is it like breast feeding your clubfoot baby?
Well, I think there are as many answers to that as there are mothers breast feeding their infants.
The short answer is say that having the clubfoot birth defect should in no way interfer with breast feeding your new baby.
Although I understand your feeding choice is a personal one, I am of the opinion that "Breast is Best", and as I mentioned in the section about Baby Wearing - children born with complications or birth defects that require treatment could use being "worn" and breast fed more than babies without any issues.
The reason being, these babies need more love and comfort offered to them in the ways of natural motherhood to help them thrive through their treatment processes. Babies instinctively know something is up - that it's not natural to go get these long, hard plaster casts put on their legs once a week, that's it's not right to have legs that don't bend like the child knows they should, not natural to wear the boots on a bar (foot abduction brace)...
I'm of the opinion that when so much of a new baby's world is un-natural, the parents should make the rest of it as natural as they can through various means including (but not limited to) breast feeding, baby wearing, and co-sleeping.
New mothers should understand that as natural as it is to nurse your baby - it doesn't always come easy and natural. I believe many mothers who would have breast fed didn't because of issues at the beginning when she and her new baby didn't ease in to the process as smoothly as she thought they should.
To be honest, although lactation might come natural, breast feeding is actually a learned skill.
Like driving a car, painting a portrait or playing piano - just about anyone can learn how, but it comes easier to some than others. Not everyone is born to be Dale Earnhardt or Mozart. Not every woman is born knowing how to nurse her baby. During my first pregnancy, my midwife told me straight up she did not believe I would be able to nurse my baby successfully. I hadn't noticed anything unusual about my breasts, but evidently she did and said my baby would not be able to latch on.
He did though. I nursed Brian for over a year; Everett a year and a half, and currently am nursing my 3rd son who is now 17 months old and showing no signs of being self-motivated to quit! My only point is to say that just because a doctor, nurse, midwife, or other person doubts you can doesn't mean it will be impossible.
While your clubfoot baby wears his casts, nursing is about as simple as nursing a non-clubfooted baby. Swaddle him tight, hold him close and let him eat while you put your feet up for a few minutes.
Once the child moves in to his FAB however, holding the baby can seem... well? Weird. Suddenly the baby's legs are splayed out in a "V" shape - how do you cuddle with that?
My own solutions were pretty non-technical: for the tiny babies in their FAB's , I would usually loop my arm though the "V" and hold them like that. Typically your arm would go under both legs, but with the brace on, compromise to just hold your arm under the top let through the V-shape.
Other times, I would put a bed pillow over my lap and lay the baby flat on the pillow, where his mouth would be up even with my breast, allowing him to lay down to eat.
And my third best way to breast feed my clubfoot babies was to lay down with them on the sofa or bed, with the baby on his side facing me, one leg of the "V" up in the air but leaned over against my body.
As infants move through their Ponseti Method treatment steps, keep in mind that they are also moving through their natural developmental steps at the same time. Your baby will hit the typical growth spurts at 2 months, 4 months, etc., that will change his appetite and eating patterns. He will also be learning new physical skills, such as rolling over, sitting up, crawling, etc., and these land marks will also change a child's eating routine.
When your baby's appetite increases, he is going to nurse a lot more often and it will seem as if you do not have enough milk for him. You don't. At least not yet. Milk is produced according to Supply and Demand - the more he eats, the more your body will produce, so do not fall in to the temptation to supplement him now with a bottle of non-breast milk! Let him nurse as often and as much as he wants so your body can get the message to produce high quantities. Given a day or two, your milk supply will meet his new demand naturally.
Because our babies have a birth defect that is being treated by wearing an external piece of hardware on their feet, when the baby changes his routine, we immediately assume the change has something to do with the clubfoot brace, ignoring other factors that would change his eating or behaviors. Growth, seasonal changes, stress in the home, vacations, visitors, starting on solid foods, rearranging the furniture in the home, learning new skills..... all of those things can and possibly will change the behavior of your baby and his eating habits.
The key is to just go with the flow. He will level out again and stick with a new normal routine again for a while. As a new mother you will quickly discover that every time you think your baby has gotten himself in to a routine you can rely on, he'll change his routine.
Another thing I think a lot of new mothers don't realize is how they can hold up their own milk production, and milk let-down process. The main culprit is being nervous.
You may laugh at this (or say "Eewww!") but my family had a milk cow much of the years I was growing up. At the age of 16 I went to work on commercial dairy farms and worked under the job title of "Head Milker" on several farms in Colorado, Oklahoma and Kansas.
The first thing I learned from a cow is that if you enter the milk barn and attempt to milk her while you are in a bad mood, she will promptly kick that bad mood right out of you. This rule applies to babies, as well. They feel your emotion and react accordingly.
The second thing I learned from a cow (who is, after all, a professional milk-maker by birth) is that a nervous cow can hold on to her milk, and will. This is true of women, also.
As with dairy cattle, in humans our milk production is dictated by Supply & Demand. The more you take out of a cow, the more she will make for tomorrow. If you take less than she has to offer, her metabolism is going to say, "Oh you don't need that much so I won't make that much anymore."
Again: the same is true of women. A woman who is nervous about breast feeding is going to have a difficult time "letting down" her milk for the infant to drink. The infant is going to become frustrated that he's sucking and hungry but there is little milk to be had! He's going to fuss about this, loudly, which is going to make the mother more nervous which is going to reduce her ability to let down her milk further.
After a couple days of this vicious cycle, her body is going to say, "Heck if you aren't going to use all this milk I'm producing, I'll just start producing less." When the baby does get to drink, there is less than he needs, so he will empty your breast and cry because he's still hungry.
This is where so many women give up and switch to using artificial milk with the false assumption they cannot breast feed with success.
If you find this scenario fits your situation, the first thing you need to do is reeeeeeeelllllllllllx. Relax...... when it's time to feed, confine yourself to your bedroom, get comfortable. Turn on your TV or some nice music. Open your shirt, open your bra, remove anything that will be a pain in the butt to work around - snuggle that baby up to you and when he latches on, take yourself a good long breath. Exhale slowly...repeat that a few times. Pet the baby, marvel at the baby, relax yourself and the child. If it helps, and I think it will, visualize your milk gushing down to feed him. Welcome that hardening sensation in your breasts that signals the let-down is happening. Don't talk to anyone, don't answer the phone, don't let anyone in the room. Ignore the doorbell.. Just you and the kid - alone with no one to make your nervous or distracted. Give yourself gentle pep-talks, tell yourself your body is making the food that both God and Mother Natured intended for your newborn baby to eat. Think about how the antibodies in your milk are protecting your infant from sickness. Think about how nobody else in the world can do this for your child but you and oh what a privilege it is! Think about the time you save not washing baby bottles or mixing artificial milk; think about the money you save not buying, washing or making artificial milk. Think about how plump and perfect your milk will make your baby and how proud you can be of yourself!
A few days of this and you will probably have your confidence built up a lot so breast feeding elsewhere will become easier for you.
Nurse often to re-build a milk supply that may have tapered off - or use your breast pump to take more milk than the baby is drinking to also help increase your supply.
Speaking of breast pumps, I recommend every mother buy at least a cheap electric model (around $40) and immediately begin to pump and store an emergency supply of breast milk to keep on hand. Should Mom need to take a medication her baby cannot ingest, she has a few days of milk in the freezer to use. If Mom has an accident and is hospitalized, there is a few days of milk in the freezer to use. Should Mom have to stop breast feeding for any reason - you have a few days of breast milk stocked up to help the child transition to the non-mother-made milk.
Also, when the baby is old enough to begin eating solids, having milk frozen in the freezer is handy to mix with the cereal.
At first you may need to help your baby latch on. Remember this: The Lower Lip Flip. Many newborns latch on with their lower lip tucked in to their mouth. Use your finger and gently flip it out. His mouth needs to be in a pucker with both lips out, not pulled in to his mouth. As he gets bigger and better at nursing you won't have to do the lower lip flip, but at first, be aware of it at every feeding and help him if he needs it.
A newborn might also have trouble getting his little mouth over a large, engorged breast. In this case, you might pinch your nipple down smaller to help him latch on.
To make nursing your baby easier in the beginning, if you don't have to leave the house, simply wear a loose shirt with no bra. This way you can just sit down and lift your shirt easily with out fighting through snaps, buttons or buckles.
To feed your baby out in public, I found it better to wear a shirt I would pull up from the bottom rather than one I had to unbutton from the top. Pulling a shirt up from the bottom to expose the breast to the child helped keep me covered. Opening a shirt from the top seemed to expose a lot more skin that I wanted fellow-shoppers to see. Covering with a blanket can help, but older babies want to grab the blanket and toss it around for fun while they eat.
How long you choose to breast feed your baby is up to you. Some mothers need to, or want to, return to work. Some wean the child from the breast at this time, while others use breast pumps to handle the situation. I say breast feed as long as you can, especially during those first weeks of life when your body will produce natural disease fighting antibodies for your baby to consume.
Remember, if you want to nurse your baby, you probably can!
Relax
Visualize
Tell yourself why it's right and good
Forget everyone else's expectations
Forget the nay-sayers
Understand breast feeding is a "Learned Skill" you might take some practice to get good at.
Do the Lower Lip Flip
Seek support from supporting individuals
Don't beat yourself up if, in the end, you cannot breast feed your baby. Know you tried hard, that is a reward in itself.
Tongue Tied Babies Find It Hard To Nurse:
When Everett was first born, he was what is commonly called "Tongue Tied." This is where the flap of skin under the tongue is too short, not allowing the tongue to extend past the lower teeth (or gum line). Because of this, Everett had a very difficult time nursing. His little tongue and mouth became exhausted too soon; he wasn't able to fill up.
This created so many problems! First, he was always hungry since he could never get enough to eat at one sitting. I was literally nursing this child every fifteen to thirty minutes 24 hours a day for the first four months of his life, while he screamed and cried fairly non stop from his constant state of hunger. Needing to eat so often also interrupted his ability to rest, so he was also screaming and crying from exhaustion.
My husband kept switching him over to a bottle, thinking he could eat better that way - which started the vicious cycle of declining milk production, and also started teaching the child to want the bottle instead of the nipple (bottles use less muscle power to drink from). Now I had a starving, exhausted baby who fought me over breast feeding because he wanted the bottle. I began to pump, but I've never been good at that and could only get milk to pump out if I had the baby latched on to the other side....that didn't work so well either.
One day when I was home alone I threw away all the bottles and formula (which we only had on hand because the hospital gave it to us as a parting gift). I was determined I would nurse this baby - so removing all the road blocks was the first necessary step!
Doctor after doctor agreed he was tongue tied and agreed it would interfere with his ability to nurse, but none would clip the flap of skin loose. Three told us it was a surgical procdure and he had to wait until he was older to survive the operation. How insane was that? Others told us it would not bother him when it plainly did. Some doctors said it would not interfere with his ability to talk, although being tongue tied does lead to speech impediments requireing Speech Therapy at a later age.
Finally I found a doctor across the state line when Everett was already four months old. He looked in Everett's mouth, said, "Yep, he's tongue tied." sprayed some numbing agent in, clipped the flap and sent us on our way. Ten minutes and $300.00 was all it took.
I nursed him in the car before our long drive home. He ate. And ate! And ATE! I could not believe how long he nursed from me after just having his tongue clipped but he was finally free to eat his fill.
That was the day we finally got our baby. The previous four months had been nothing but a deep, dark blur of crying from all of us. After his tongue was clipped free to move naturally, Everett became a new child.
If your baby has trouble nursing, look in his mouth, he too could be tongue tied. Clipping the flap of skin is very simple and does not require any kind of surgery, just a spray of numbing agent and a small snip from scissors.
Pumping and Storing Breast Milk for Freezing:
Some baby bottles use a plastic liner that you fill, use, and throw way. These little bags make excellent storage bags for breast milk and are easily obtained in the Baby-Section of most retail stores in boxes of hundreds.
Pump your milk using the breast pump of your choice.
Fill the bag with 2 ounces of milk, twist the top tight, and seal with a rubber band wrapped tightly around the twist.
Mark the bag with both the total ounces it contains, and the DATE.
Do not toss this bag loose in your freezer - put it in to a large gallon size freezer bag or other freezer container to prevent any cross contamination from packages of meat (or other food items). This also prevents the bag from being lost, and eventually wasted.
Use one main container for each month - for example all of the frozen bags of breast milk from July will be in a gallon size bag marked "July 2007". Rotate your stock, using oldest to newest.
Breast milk can last in a deep freezer for about six months. In the freezer of your refrigerator, only about 3 months. Once opened, breast milk should be used immediately with any extra thrown away (which is why you only freeze 2 ounce bags, to eliminate wasted milk).
You will notice that the "cream" will separate from the milk in the bag. This is normal, just mix it well before you use it.
Breast Feeding On Car Trips:
As you might imagine, having three sons born with bilateral clubfeet, we traveled to Iowa City, Iowa to see Dr. Ponseti for correction.
From Oklahoma that was about 700 miles one way - and we were traveling with infants on those trips who were being exclusively breast-fed.
I admit this probably breaks the law in all 50 states and at least four territories, but I found I could nurse my babies with out ever taking them out of the car seat.
I'd climb in to the back seat and silly as it sounds, just lean my breast over where the baby could reach and suck.
I don't advocate doing this on a regular basis, but when you have a LOT of miles to cover with kids in the car, sometimes you have to adopt the attitude of "Making Hay While The Sun Shines", or in our case, putting miles behind us while the sun shined.
Risking your own life to ride with out a seat belt is one thing you can choose to do - but NEVER NEVER EVER take the child out of his infant restraint seat while your vehicle is moving!!! Not to feed him, change him, burp him, hold him.... If your baby requires an action that he needs to come out of his seat for, park the car safely first!!!
Incidentally, a woman can also pump milk while riding in the car (but you might want to let your husband drive while you do this!).
When it does come time to pull over to take the child out to nurse him, many male drivers do not think ahead far enough to pull around to the dark side of the gas station for you before they park, expecting you to nurse pulled right up at the front door of some busy convenience store.
Um, just gently ask your male-driver, as he pulls in the drive way, to please park around back so you can nurse with out being on public display.